I’m Bruce Vento. For the past 30 years I have had the honor of
representing the citizens of Minnesota. As a State Legislator and Member
of Congress, I dedicated myself to changing the status quo, whether it's
helping the homeless, creating more parks, curbing drug abuse, or
expanding the rights of consumers. Often, at night I reflect on my day’s
actions and ask myself: have I made a difference in someone's life? Have I
created opportunities for others? Have I helped build hope?
My focus changed
dramatically this year. I was diagnosed with malignant mesothelioma in
late January. As most of you likely know, mesothelioma is the tumor that
is associated with asbestos exposure.
I underwent aggressive
surgery about two weeks later at the Mayo Clinic in Rochester. My thoracic
surgeon, Dr. Dan Miller, removed my left lung and a lot more. Today I’m
concluding the clinical chemotherapy treatment at Mayo.
I am fortunate to live in
Minnesota where we have world renowned surgeons and cancer specialists.
When I was diagnosed, my doctors did not despair, nor did they burden me
with just statistics. They set out to treat me. I have since learned that
not every patient is so fortunate.
Some patients may be
advised that such a tumor is incurable. They are told that the best they
can expect is to live another 8 to 18 months. They are told that surgery
or chemotherapy won't really help.
Faced with such advice,
most patients will be demoralized. They might give up. If they choose to
fight on their own they must search for help, sorting through radical
sounding treatments, and explanations of care that are painful, expensive,
and of questionable consequence. Patients that are lucky enough and can
afford it may land in LA or New York with a specialist. They may find that
their HMO questions covering such "experimental" treatment.
America is a great country
with vast resources and intellectual firepower. But it still takes time to
learn about a disease and find a cure. Most of us are not trained
oncologists, this is help and service that we should have reasonably
available when we need it. Billions of dollars have been spent on
litigation since mesothelioma was first reported in the early 1950s --
millions on experts who are paid to prove and deny causation alone. But a
pittance has been spent on finding a cure. Drug companies won't invest
money to find a cure because "only" 3-4000 Americans are diagnosed
annually. Asbestos companies have done nothing, even though it would
certainly be in their interest to help detect and identify a treatment
cure. The Government hasn’t stepped up perhaps because we want to believe
that in a short period of time, the disease will simply fade away. So, it
seems the cure is avoidance of the asbestos; period.
Despite the lack of research, and the
dearth of funding, there are a handful of extremely dedicated doctors who
believe that this cancer tumor has an Achilles heel--that it can be
attacked at the molecular level and we need to address it. One of the
first doctors I consulted when I learned of my diagnosis was Dr. Harvey
Pass, now the Chairman of the Science Advisory Board of the Mesothelioma
Applied Research Foundation, or "MARF."
MARF is a non-profit foundation
whose mission is to eradicate mesothelioma as a terminal disease.
Amidst so much despair, MARF offers
hope by assembling some of the best and brightest medical talent. These
experts are united. They are in the trenches fighting this cancer tumor
every day, staying abreast of world wide research. They know what
therapies hold promise. They also know the research money is limited and
will give priority to laboratory and clinical research that offers real
hope to patients.
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Bruce Vento with his grandchildren |
I have a degree in biology and taught
high school science classes for ten years. I have always been deeply
interested in medical science. I am impressed -- from an academic and
personal point of view -- with the ideas that MARF is exploring to expand
the therapies available for mesothelioma patients. The list is impressive:
infusional, photodynamic and gene therapies, among others. I know from
experience that there is no "standard of care" for mesothelioma.
We, as patients, embrace this reality
and are prepared to move to the next best thing. But we’ll never know
what's "best" unless medical centers aggressively recruit and patients
actively participate in clinical trials. This is a process that should've
started years ago, but better late than never.
Meso patients have advocates in the
courtroom. They also need advocates in the laboratories and in the
corridors of Congress where some cancer research money is allocated. AIDS,
breast and prostate cancer all have their advocacy groups. MARF should
fill the void for mesothelioma patients.
MARF is here to begin a new chapter. We
believe that mesothelioma can be cured, if we are committed, if we
mobilize, if we apply our collective brains and strength. We need to
bridge the gap between the medical libraries and the hospital rooms; take
the information out there already, add to it, focus it, harness it -- and
bring it to the patient who was just diagnosed today.
Every single day a patient lives, hope
remains that a cure can be found. If we know that our best and brightest
are working on fixing the problem, we’ll have greater reason--greater
hope-- to continue the fight.
To members of the drug and biotech
industry, please help. Since this tumor is a microcosm of many solid
tumors, every dollar spent to solve its mysteries could potentially help
cure other forms of cancer -- prostate, lung and breast cancers.
To the asbestos companies, I ask you to
take a hard look at your responsibility. The asbestos industry once touted
asbestos as "the magic mineral." They were wrong. Many of you have
acknowledged your negligence. Now it's time to help clean up the mess.
MARF is not about fixing blame, we want to fix the problem. Let's do the
right thing.
To the trial lawyers, for both sides, I
ask you to expand your role as advocates. You have done good work in
advocacy for your clients, but every mesothelioma patient’s first priority
is life. He or she wants to live. You have the resources, wisdom and
compassion. Please help commensurate with your wealth and knowledge.
To my colleagues in government, please
fund research for mesothelioma at a proportionate level. Of the more than
30,000 cancer research grants awarded by the Federal government since
1987, only 48 grants even mention mesothelioma.
To the
patients, let me say this. I know what you are going through. There is a
public side and a private side to our battle. On the outside, we try to be
strong. But inside it hurts. I can't help asking myself why in this great
country after knowing about this cancer for so long and spending so many
billions on litigation we haven't ever really tried to defeat the common
enemy -- the tumor itself. Somebody needs to stand up and advocate for us.
MARF can do that; mobilizing and giving the patient a determined voice.
I want to also thank the many patients
-- my new brothers and sisters -- who have sent me so many heartwarming
letters and kept me in your thoughts and prayers. I feel fortunate to have
so many friends that support me in this fight. I’m from Minnesota and you
don’t need to worry about my spirit. "I'll fight until Hell freezes over,
and when that happens, I'll don a pair of ice skates and keep on slugging.
Thanks to MARF for your
support in facing this challenge. I certainly encourage each of you today
to join in this common mission.