|
For the past few months (circa
1997) I have been corresponding with a very special lady. She has been
called a "miracle" by her doctor. She had surgery for her mesothelioma a few
months ago, and is now running regularly -- despite the fact that before her cancer
diagnosis she had never exercised vigorously. She has spirit and she has discipline. Life
gave Cori a big ugly mesothelioma lemon, and she is making lemonade. She is now
participating in a study at Emory University on the impact of exercise among cancer
patients. This is Cori's heartwarming story. If you would like to correspond
with Cori, please let us know. She has graciously volunteered to help other patients and
their families.
*
* * * * * * *
As I reflect today on a day back
in early 1995 when I first noticed a nasty pain I experienced as I attempted a serve in a
tennis match, the phrase "ignorance is bliss" comes to mind. Little did I know
then that it would take over two years before physicians were able to make a diagnosis.
After countless CT scans, MRI's, mammograms, EKG's, TB tests, etc. etc., my doctors still
were bewildered as to what was causing my pleural effusions.
Finally, in May of this year
(1997), my doctors decided that I needed exploratory surgery. The night before my surgery,
I spoke to Dr. Frank Ferrier, who is a wonderful surgeon. I remember him telling me so
sincerely and convincingly: "I don't know what we're going to find, Cori, but I'll
tell you this, I guarantee you that you don't have cancer". My heart really went out
to him when I awoke after surgery, and he was standing by my bed telling me that they had
found something I had never heard of before: "diffused malignant mesothelioma - a
rare type of incurable cancer". The pathology reports from Mayo and Emory indicated
that the tumor was epithileal type and the staging was unclear, but probably Stage II,
without lymph node involvement.
At the time, these words were, of
course, foreign to me. All I knew was that I had THE BIG C. I do remember being very aware
of the fact that Dr. Ferrier was terribly upset. In fact, I remember clearly saying to him
how tough it must be to be a surgeon at moments like this. I also remember feeling quite
uncomfortable after the pleurecotomy and decortication that had been performed that night.
In the days that followed, as
supportive friends and family rallied round, I was given so much material to read, (mostly
from the Internet), that it was overwhelming - the one Website though that offered the
most information was Roger Worthington's.
I initially saw two oncologists
who my insurance company sent me to. One of them told me that in reality my only option
was "to go home and wait to die". The other suggested chemo/radiation - CAP -
Cisplatin/Adryamicin/Platinum. For a variety of reasons, I considered neither option
viable for me. Instead, through a friend in California, I learned of the clinical trials
being conducted with Onconase (manufactured by Alphacell) on mesothelioma patients, by Dr.
Spence McCathren at the Thompson Cancer Center in Knoxville, TN.
I saw Dr. McCathren in June. With
a big smile he turned me down for the clinical trials due to the fact that, in his
opinion, after surgery the disease was really not measurable, thereby making me
ineligible. He urged me to see
Dr. Harvey Pass at Harper
Hospital/Wayne State University in Detroit, who apparently had been one of the pioneers in
the field of PDT - photo dynamic therapy.
I had an appointment with Dr.
Pass, also in June, and was most impressed both by his empathetic manner and his extensive
knowledge of mesothelioma. He indicated to me that they had not yet had demonstrable
results with the original studies with PDT, but that Drs. Steven Hahn and Joseph Friedberg
were investigating a new generation photosensitizer drug at the University of Pennsylvania
which I may be a candidate for at a later date. He requested a copy of my blocks and
slides for DNA studies to do further research into one theory regarding the virus SV-40.
Apparently Loyola University has recently received a grant to study the possible
connection between mesothelioma and the first generation injectable polio vaccines - which
I received in Argentina.
|
 |
|
Cori and her son,
Scott |
Dr. Pass' suggestion was that I
have a follow up CT- scan and complete blood test every 90 days. This I recently did -
they were viewed by four physicians - my surgeon, Dr. Frank Ferrier; Dr. Spence McCathren
in Knoxville; Dr. Harvey Pass in Detroit and my original oncologist. Their report:
"there has been a further decrease in the amount of pleural thickening since the
prior study in June 1997." My doctors were impressed and needless to say I was
overjoyed. Dr. Ferrier told me I was " a miracle." Dr. Pass' report was
"nothing but good news, keep it up". Dr. McCathren's advised that I "keep
doing what you're doing". But the most telling of all comments was from oncologist:
"we doctors really don't have all the answers to the mind/body connection, but
whatever that is, you sure are on the right track"!!
What is that "right
track"? Is there some formula for my success that others can use? I think so. In the
past few months, rather than despairing, I have concentrated my efforts on bringing
balance into my life - spiritual, mental and physical. I could probably write a book on
all the many changes I have made in every area of my life, and would be happy to share the
particulars with other patients, but to summarize:
(1) I now exercise regularly at
the YMCA;
(2) I eat a VERY healthy diet,
all organic, no processed foods, mainly massive quantities of fresh fruit and vegetables,
all juiced to derive the fullest benefit from them;
(3) I take lots of herbs and
vitamins;
(4) Probably above all, I
maintain a very positive attitude and pray a lot - my life is in God's hands, and I have
made a commitment to do everything I can to help Him, by getting my body strong and
healthy again.
Back in May I set three goals for
myself, short, medium and long range, and God willing I will live to see all of them come
true. The first, to enjoy my 50th birthday which is coming up soon, in Argentina with all
my family. My second goal is to compete in the 10K Atlanta Peachtree Marathon in July
1998, (bear in mind I never excercised in the past, but it's never too late to start). And
my third goal is to see my youngest son Scott graduate from high school, five years from
now. Last week my lung specialist reminded me to "make sure you include me in Scott's
graduation announcement mailing list" -- don't worry I will!!
Experiencing cancer has enriched
my life in many ways - with the loving support of family and friends, I am learning to let
go of yesterday, to not waste energy worrying about tomorrow, and attempting to live ever
mindful of the present, savoring each moment in its every dimension, because, to borrow
the the words of John Lennon "Life is what happens to you while you're busy making
other plans."
** POSTED NOVEMBER 18,
1997 **
"Happy to
Help" -- January 26, 1998
Hi there - it's me
again. It's been a while since we've been in touch. I do appreciate your updates and find
the information extremely helpful, albeit that some of it makes for very tough reading.
I just thought you'd
like to know that I just had another set of CT scans, and once again, they show a
"decrease" from the previous ones in September. Need I add that I was overjoyed?
I have just sent a set to my "friend" Dr. Pass, for his eagle eye. He has been
monitoring my progress. I believe his opinion weighs much more heavily in my mind than a
"plain" radiologist or oncologist here -- neither of whom have experience in
mesothelioma. I trust Dr. Pass' judgment and value his opinion considerably. I also sent a
set to Dr. McCathren who also continues to monitor my "progress".
As an aside, this
past week my story was featured on a local prime time special on "Alternative
Medicine." As you may or may not be aware, I've made a concerted effort to help
rebuild my immune system by means of nutrition, (which includes dietary supplements
including herbs, vitamins and homeopathic remedies), as well as massive quantities of raw
fruits and vegetables, and exercise.
Anyway, if you're
interested in the update you can access the show's website at
http://www.accessatlanta.com/wsbtv/
anpt/herbs/html. Apparently the show generated more response and feedback,
(fortunately positive) than any other show they'd presented. I was swamped with emails on
the strength of it, and have spent all week responding to same.
If what I shared
helped just one person to not give up hope, or to enhance the quality of their life as
they deal with cancer, it makes me happy. I hope this was the case. Two meso patients
contacted me, one from Arizona, and one from Tennessee - I gave them both your website as
well as Drs. Pass and McCathren's names.
Thanks again for
keeping in touch. Regards. Cori.
** POSTED JANUARY 26, 1998
**
I asked Cori to send an email to
a friend of mine who was recently diagnosed with Stage IV colon cancer. Within 24 hours of
my request, Cori wrote the following note, which I strongly recommend that you read. Cori
is such an incredibly strong, smart and compassionate human being - it's just a pleasure
to know her. Her advice is CONSTRUCTIVE!
RGW
*
* * * * * * *
Dear Susan:
I am so sorry to hear about your
cancer diagnosis, a fact a friend of yours, Roger Worthington has shared with me. I, too,
received a very grim prognosis when I was diagnosed and awful statistics. I chose to file
those away in the deepest recesses of my mind and get on with the business of living.
Cancer is undoubtedly a tough opponent and the cancer journey is a challenging one, which
will forever change your life. But you are tough too !! Tougher. Or need to be.
My first suggestion would be to
get someone to RUN, as opposed to walk, over to your nearest bookstore and purchase a
wonderfully inspirational book by Dr. Bernie Siegel entitled 'Love, Medicine and
Miracles'. I will forever credit this book with being, for me personally, a springboard to
not accepting what the doctors had to say and taking charge of regaining a path to health.
I have read hundreds of books since, but I regularly re-read Dr. Siegels book - it
is quite dog-eared by now I assure you. In it he talks of what he calls "Exceptional
Cancer Patients"...a small minority of patients, who defy the odds - and how. The
majority of patients stoically or fearfully just accept what the diagnosis is - and almost
mark off the days on a calendar. Another percentage get really angry and decide to fight
their cancer like a terrible enemy. Neither of these groups fare well. He describes the
relatively small percentage of patients who survive way beyond any explanation.
I was diagnosed with a rare,
always terminal, cancer - at the time I was told I would not make it to my 50th. birthday
- I am headed for 53 now!! I celebrated my 50th. birthday with all my family in Argentina
in grand style - a goal I had set for myself at the onstart - have seen another son
graduate, which I was told I would not be around for, and plan on being there for my
youngest son's graduation in 3 years. In fact I just finished taping a second prime time
special last week on Alternative Med - the first having been taped 2 years ago - on The
Truth about Herbal Medicines.
I am not a medical doctor, so I
would not presume to give you any medical advice - but I would certainly advise that you
or close family members, research, study, think "out of the box" when it comes
to methods of treatments - get second opinions, and third if necessary - consider both
traditional as well as alternative treatments - or a complement of both. I personally know
several colon cancer survivors - in fact I can think of one particular friend, Leslie, who
lives in Calif and I am sure she'd be happy to talk to you. She was faced with a similar
diagnosis as yours - 6or 7 years ago I believe. She is happily enjoying a great quality of
life - in fact we were together in the Bahamas just a month ago and I can't remember a
time we have laughed as much. It was so healthy and invigorating.
Having travelled this journey for
over 2-1/2 years now there's so much I'd like to share with you - maybe over the phone -
it'd be impossible via email. Regaining health and a certain qualify of life - including
"living with cancer" is not an easy task - in fact it is a daunting one. I
obviously do not know what the one magic ingredient is, but I feel that a combination of a
real desire to live, faith, positive attitude, excellent diet and juicing, supplements,
exercise, rest, conviction, educated decisions, taking charge, etc etc all blend together
in a successful outcome. It is HARD work, trust me...it DOES NOT just happen - I'm sure
you can talk to 100 survivors, and get 100 different recipes for their success, but I'm
equally sure that all of them will share common characteristics - including faith,
tenacity, determination, positive mind set, knowledge of their cancer amongst probably
many other traits. Susie, I wish I could say to you that surviving the cancer diagnosis is
an easy process - it is NOT by any means. But it is by no means impossible either.
There are wonderful books out
there - The Cancer Conqueror by Greg Anderson; Getting Well Again by Carl Simonton; A
Cancer Battle Plan by Anne Frahme, Cancer as a Turning Point - LeShaun - all of which will
give you different ideas about how to "fight" cancer...sometimes it can be
overwhelming, but I feel it is important you do a lot of reading and then decide what path
is right FOR YOU. I cannot emphasize enough how important I feel it is that you take
charge of your cancer journey, set aside the fear and/or conventional approach to "go
home and do what the doctor says verbatim with no questions asked " which has been so
ingrained in all of us.
Become informed - research - and
then decide for yourself - bearing in mind that you will no doubt encounter (well-meaning)
resistance to your decisions which may not conform to others way of viewing your
cancer. Take off any cloak you may be wearing of despair, victimhood, anger, fear, denial
- and slowly replace them with optimism, courage, can-do-it attitude, and knowledge and
above all faith. I myself juice a lot - great start Jay Kordich's book A Juiceman's Power
of Juicing - and I credit this with helping me get healthy cells working in my favor. John
Robbins Pulitzer prize winner "Diet for a New America" was very enlightening,
and steered me clear of pesticides, hormones, sulphides, processed foods etc etc in our
diet and got me on a much needed healthy diet - also Dr D'Amato's Eat Right 4 your
type" . I set about de-toxing my body with nutrients, healthy cell building and
cleansing foods...and supplementing it with desperately needed vitamins and minerals I was
deficient in. I concentrated heavily on rebuilding an immune system in crisis - cancer,
after all, is the ultimate breakdown of the immune system. In addition, I have taken a
myriad of other supplements which have been credited with helping with cancer - MGN-3,
IP-6, Immutol-425, Essiac, echinacea, Noni Juice, Cactus Nectar, Pau D'Arco, colostrum,
just to name a few.
It boils down to positive
attitude, positive attitude, positive attitude and study, study, study......I ask
questions constantly - have become a VERY familiar face at my neighborhood health food
store - joined cancer forums on line which can be a valuable source of information sharing
with other patients - subscribed to on-line services such as PDQ, Harvard PaperChase, and
certainly gained much knowledge about my particular type of cancer through Roger's own
vast resources on his website.
After or before or along with
chemo there's centers such as Livingston Wheeler in San Diego, Gerson in Mexico, Oasis of
Hope in Mexico, IAT Clinic in Bahamas, Immunocomp in
Atlanta - which offer a myriad of treatments that can be beneficial and have been, for
many. Newer trials with hyperthermia, radiostatic surgery, RITA, vaccines,
anti-angiogenesis, etc etc are all worth exploring - I know it takes ENERGY and this is
sometimes very much at a premium at a time like this, but if you stay focused on your goal
- TO LIVE - ultimately very much worthwhile.
In closing Susie, let me just say
one thing - I remember vividly not truly understanding a statement so many patients seemed
to make in describing their cancer journey - to the effect that it had been an enriching,
positive life altering, turning point in their lives. Today, I truly understand totally
what they were saying. My journey so far has definitely enriched my life in ways I could
never have anticipated...it is my hope and belief that you too one day can same the same
thing.
My prayers and thoughts are with
you and your family at this time. Please feel free to contact me thru Roger G.
Worthington. I'd be happy to help in any way I can....there's too much for email - even
though it appears nonetheless that I've written a chapter for a book already with this one
!!! Take care of yourself, and gear up to face the upcoming challenge with faith
confidence and courage. You'll need ALL in unlimited supplies but these ingredients will
serve you well, trust me.
All the best, Sincerely - Cori
Harth.
*** SEPTEMBER 16, 1999 ***
An
Update -- May
16, 2001
I have been travelling a lot this year - in fact I just
returned from a three week protocol in Arizona. I'm the first mesothelioma patient there
to receive the leading edge dendritic cell vaccine - hoping for a positive
outcome.(dendritic cell vaccine was in the news last week on ABC/Univ of Michigan trials).
My tumor has progressed quite a bit this year unfortunately,
so I'm determined to slow it down somehow. I also spent a month at the Paracelsus Klinik
in Switzerland in March, undergoing whole body hyperthermia, Iscador and a variety of
complementary therapies. My quality of life continues to be excellent, thank God, and I
feel good.
Just that the tumor has continued to grow and grow - inches
thick now. All the doctors are mystified though - as each has said in different words
"it just seems to be residing there, not robbing you of your life's force or
vitality" - no one would know even now that there is a thing wrong with me.
I'm headed back to IAT mid-June for my 2-week tune-up, back
to Arizona in July, to Argentina in August with my kids to celebrate my Dad's 80th, to
Arizona in September for final dendritic vaccine, and back to the IAT in October for
tune-up!!
In between, I'm still "trying" to work fulltime (my
Co has been VERY understanding and supportive), and keeping up with 3 active young boys
(men I guess I should say, 17, 19 and 22), plus their new pets - all under a year
At the last count, I'm taking about 125 supplements a day - a
little hard to swallow - and self-administering 15-20 shots a day, between IAT, dendritic
and Iscador - I'm like a walking pin-cushion.!!
Take care
Sincerely, Cori
An e-mail to Dr. Nicholas Vogezang --
February 6, 2002
Below is an e-mail Cori sent on February 6 to Dr.
Nicholas Vogelzang of the University of Chicago Cancer Research Center inquiring about a
new, non-toxic therapy she heard of in an e-mail of Dr. Vogelzangs.
Dr. Vogelzang is a member of the Board of Directors of the Mesothelioma Applied
Research Foundation (www.marf.org)
*
* * * * * * *
Dear Dr. Vogelzang
I have heard of you and your work with
mesothelioma from various sources over the past couple of years, but mainly from Ken
Markovich whose mother sadly passed away in November after a brave fight against this
insidious form of cancer.
|
 |
|
Cori Harth receiving
treatments in Arizona. July 10, 2001 |
I originally started having problems back in March
1995, and had several thoracentesis in the ensuing couple of years - but no diagnosis.
Finally in May 1997 I underwent what started out as exploratory surgery but resulted in a
full-fledged pleurectomy/thoracotomy and a very grim diagnosis of "diffused malignant
pleural mesothelioma of the right lung, stage III probably".
It would take me forever to list
all I have done since the original diagnosis, but suffice to say that after much research
on the subject, I made the decision not to pursue any traditional protocols recommended to
me, and instead have concentrated on alternative medicine and I embarked on a very
concerted effort to rebuild my weakened immune system. This 5-year journey has taken me to
Mexico (for Vit C, laetrile and shark cartilage), to Argentina (Hansi), to the IAT in
Bahamas (Immuno-Augmentative therapy), Switzerland (Paracelsus Klinik), Atlanta (Mc Coy
treatment with GMCSF & IL-2), Arizona (dendritic vaccine at Aidan) and even the Dom
Republic (stem cell transplants). I have taken countless, countless vitamins, minerals,
immune boosting supplements - way too numerous to list at this time.
Recently Ken Markovich shared with me an e-mail you
had sent him after his mother passed away, in which you refer to (and I quote) "new,
non-toxic therapies for meso"... This statement of yours obviously intrigued me,
particularly coming from a renowned member of the orthodox medical establishment. I have
been sort of involved with MARF since its
inception, (I helped edit their original publication, and am quoted in the brochure, as
well as being named a 'patient advocate') I have met Mike Bittner, and have to the best of
my knowledge, in general kept abreast of the research that is being done to further
"our cause" (i.e. helping those patients such as myself who are trying to
survive mesothelioma). But in all honesty, despite my efforts to stay current with what
treatments are out there for mesothelioma patients, I sure have not found any conventional
"non-toxic" therapies for mesothelioma. My own oncologist, Dr. Richard Leff of
Georgia Cancer Specialists has been incredibly supportive of my efforts over the past few
years, and I know he too is constantly on the lookout for what is available for others
such as myself who for a variety of reasons have elected to pursue non-traditional
therapies. Based on my results so far, I don't think he would "allow" me to
undergo conventional chemo.
I remain firmly convinced that in years to come, the best approach
to combating this disease will end up being a balanced one, i.e. combining both
non-traditional holistic with conventional medicine. Also, several years ago, a
doctor/cancer patient told me something I have never forgotten -he felt strongly that if I
could just stay alive for a few years, scientists would come up with something to help me
survive with mesothelioma for many more years. If such an option is already out there for
me, then I sure have not heard about it, and would certainly like to hear much more.
|
 |
|
Cori, who
cannot wait to be a grandma, with a friend and little Payton - Christmas, 2001 |
Today my approach to my cancer is probably more that I have
"learned to live with it" and treat it more as a chronic problem, than a
terminal one. For the fact that I have been granted several years beyond all predictions,
I am truly grateful - I certainly know that I have been an exception rather than the rule.
However, too, I cannot ignore the fact that based on CT's the tumor in my chest continues
to encroach on my lung and surrounding tissues/organs, so I would definitely welcome the
opportunity to shrink it as much as possible. But what is of paramount importance to me is
that in so doing, I do nothing to hurt my immune system, which is probably unusually
strong and I feel has been so instrumental in keeping me alive this long. I do not want to
undergo traditional chemo regimens such as Doxorubicin or Cisplatinum or Gemcar etc
etc...I feel the risks (and damage) would far outweigh any potential benefit they may
offer me. I originally turned down the "in"famous tri-modal therapy/ EPP offered
by Drs. Valerie Rusch and Sugarbaker among others - neither the chemo nor radical surgery
appealed to me then, or now even if I were a candidate, which I am probably not.
Ken Markovich has urged me to contact you more than once in
the past - I have been reluctant to do so, and maybe the timing was just not right. But I
am doing so now, in the hopes that you truly are experimenting with some success with
non-toxic, non-invasive therapies for mesothelioma, and that I might be a good candidate
for those experimental treatments.
I look forward very much to hearing from you. I thank you
in advance for your help and trust that our paths will cross if they are meant to.
Thank you. Sincerely, Cori Harth.
Cori went on to remind us:
When I was diagnosed I set 3 goals, short, medium and long
term. The first was celebrating my 50th birthday in Argentina with all my boys and my
family there (8 mos) - I did that in December 1997. My medium range goal was to
participate in a 10K - in October 1998 I participated in the Aids Atlanta Walk-a-thon. And
my LONG-term goal, 5 years, which at the time they told me was an impossible dream, was to
see my youngest, Scott, graduate from High School . We ordered his cap and gown last
weekend, and his graduation is May 24 - just a couple of months away. It gives me goose
bumps, and I feel ever so blessed. If on my last breath, I intend to be in that auditorium
when he graduates.
Of course, no one says I can't up the ante - I already
have. Now my goals are to see him graduate from College, and then become a grandma one
day. :-)
Sincerely, Cori Harth
March 3,
2004
I am very sad to inform
you that Cori Harth passed away earlier today after a nearly seven year
battle with mesothelioma. She was in Buenos Aries, Argentina visiting with
her family and died in a local hospital where she was being treated for
kidney failure, a minor stroke and an infection. In late December, Cori
traveled to Buenos Aries, her home country, to visit her father who is in
very poor health. Upon her attempted return to the states in late January,
Cori fell ill at the Buenos Aires airport due to kidney failure, and spent
the next four weeks in the hospital. She was released two weeks ago and
re-admitted about five days ago.
Cori was an incredibly
strong, loving and passionate human being that served as an inspiration
for many others including my mom and our family. She will be sorely missed
by those that knew her and were touched by her loving manner and
incredible will to live.
Cori, who lived in
Marietta, Georgia is survived by her three boys, Stuart, Stephen and
Scott.
Please join me in
praying for this wonderful woman and her three sons.
God Bless,
John M. Markovich |