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Fred Bynder is a 67-year-old who is retired from a long and
successful sales career. All his life, Fred was extremely active. For 17 years, while his
sons were growing up, Fred coached and played soccer and spent every opportunity camping
with his family. On January 10, 2003, he was diagnosed with malignant pleural
mesothelioma.
In February 2002, Fred and Madeline Bynder purchased a mobile
home in a senior community located in the beautiful foothills of Newbury Park, California.
This would allow them to be close to their children and grandchildren while enjoying their
retirement years. In the month before their move, Fred and his closest friend were able to
paint and remodel the entire house. On March 16, 2002, Fred and Madeline, after 45 years
of being together, finally moved in to their long-time dream retirement home. What a
wonderful life they thought to themselves, not knowing what the future held in store for
them.
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The Bynder Family
Left to right, back row Randy, Fred, Jodie, David, Madeline, Rob.
Front row Candace, Lynne, Benjamin, Regan |
In October 2002, after completing all the work on their home,
Fred and Madeline, along with their good friends, went on a trip to the Grand Canyon,
Bryce Canyon and Zion National Park. Fred was able to hike miles of the canyons with the
highlight being a helicopter ride at Bryce Canyon. This was the first of many trips the
Bynders had planned on taking.
In November 2002, Fred developed a violent cough, which
prompted him to seek medical attention. A chest x-ray revealed fluid around his lung and
after preliminary testing, it was determined that he had developed a spontaneous
pneumothorax - a sudden collapse of the lung that occurs as the result of a tear in the
lung tissue. In December 2002, Fred underwent a transthorascopic lung biopsy and
pleurodesis. In January, the fluid returned, causing the staples from the original surgery
to become undone. A thorocotomy was performed on January 8, 2003, at Ventura County
Medical Center, after a chest x-ray revealed a recurrent pneumothorax. During the second
exploratory surgery, Fred's thoracic surgeon saw nodules throughout his chest cavity.
Tissue specimens were removed and sent to the University of Southern California School of
Medicine for pathological testing which, two days later, resulted in a diagnosis of
mesothelioma.
Fred and Madeline, along with their three sons and
daughters-in-law, were completely devastated by the news and particularly so because
malignant mesothelioma is a cancer so rare, few have ever even heard of its existence. The
children immediately began researching this deadly disease. The children followed links
from various websites which eventually led them to MARF ( www.marf.org ), the Mesothelioma Applied Research
Foundation, the national non-profit organization dedicated to eradicating mesothelioma as
a life-ending disease. It was through MARF the Bynders discovered there were several
nationally-renowned expert treaters for mesothelioma. One of whom was right there in
California - Dr. Robert Cameron of the University of California at Los Angeles School of
Medicine.
On January 28, 2003, Fred and Madeline, along with their
children, consulted with Dr. Cameron who told the Bynder family there was no cure for
mesothelioma but that he felt Fred was definitely a candidate for surgery should he make
that choice. This was good news for Fred since he was willing, with his family's support,
to do whatever was necessary to prolong his life.
On February 4, 2003, Dr. Cameron performed a left
posterolateral thoracotomy, a life-extending parietal pleurectomy, a complete pulmonary
decortication, partial resection of the diaphragm with complex reconstruction using bovine
pericardium, ligation of the thoracic duct, and mediastinal lymph node dissection. During
the surgery the left vagus (a cranial nerve distributed to the pharynx, esophagus,
larynx, lungs, heart, stomach, liver and spleen) was removed because of its
involvement in the mass. As a result Fred was left literally speechless. Fred was given a
collagen injection in the hope that his voice would return, and by the time he left the
hospital on February 18th he was able to speak somewhat above a whisper.
Fred began five weeks of radiation on March 27th. While
undergoing the radiation, Fred experienced extreme redness and itching on his skin, loss
of appetite, difficulty in swallowing, and extreme fatigue. Since the conclusion on April
30th, he has begun to slowly recover from the radiation treatments and extensive surgical
procedures.
Through it all, Fred has been able to maintain his
extraordinary sense of humor. He refuses to give up on his will to live. As he slowly
regains his strength and when he feels well enough, he and Madeline plan to travel over
the next several months and see some of the places they've only dreamed of visiting. They
are looking forward to the arrival of another grandchild in late August. Fred feels he has
been able to endure the last six months of physical and emotional pain in part because of
the love, dedication and support of Madeline, his wonderful children, his extended family
and close friends. He is ever grateful for the expertise and care that he has received
from the medical team at UCLA. The Bynders remind us there is an old cliché, "never
give up". It's become their motto now, what they live by. Fred and Madeline say they
take one day at a time and will continue to do so for however long they can.
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POSTED JUNE 10, 2003 ***
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Madeline and Fred with Dr. Robert Cameron at the First
International Mesothelioma
Symposium held in Las Vegas, Nevada.
October 14-18, 2004
Click
here to view the schedule of
events |
Samuel "Fred" Bynder passed away on
December 30, 2004
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