San Pedro, CA - October 8, 2007
John McNamara's voice
fell silent, once and for all, on October 8, 2007. The voice of
a champion, the voice of a husband, the voice of a father, the
voice of a patient, the voice of a veteran, the voice of a hero,
the voice of an advocate, the voice of a friend, the voice of a
man demanding justice, the voice of a seer, the voice of a
fighter, the voice of a peacemaker--each of these myriad voices
and a thousand more fell silent on Sunday, more than three years
after John was diagnosed with pleural mesothelioma.
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John McNamara with his daughters, from left to
right, Shannon (age 12), Katherine Claire (age 11)
and Nicollette (age 21). September 10, 2007 |
The reverberations of John McNamara's voices, however,
resonate with the same strength and power as on any other day,
because the voice of truth speaks forever.
"I met John shortly after he was diagnosed," said friend and
attorney John Caron. "After five minutes you realize you're
spending time with a lifelong friend. He took on life with
extraordinary energy, and his fight against meso was the same
way. He didn't know the meaning of rest. Shortly after surgery
he was walking, hiking, then calling from the top of Diamond
Head with his daughters, laughing to say he'd passed a bunch of
younger people, none of whom appeared to have mesothelioma.
That's the same energy he poured back into the meso community."
Unbowed, unafraid
Like tens of thousands before him, John was struck down by
mesothelioma in the prime of his life. Even with mesothelioma,
at the age of 61 John's "prime of life" was a force to reckon
with. Two days before he died, John and his beloved T.C. were in
Washington, D.C. with their "band of meso brothers" advocating
for increased medical research on this dreaded disease.
The foundation of his life was his marriage to T.C. More than
thirty years of passion, love, commitment, struggle, and
partnership had molded John into the iron man-mountain that he
was. Despite the bad odds, the frequent hospital visits, and the
roller coaster of emotions all cancer survivors ride, if you
spent one minute around this dynamic duo you felt that
everything was possible. After his surgery, radiation therapy,
and interferon treatments, John seemed to be riding the crest of
a beautiful wave, propelled by powerful forces, without end.
Even when the end came, his doctors puzzled over the exact
precipitating cause. John suffered a recurrence of his cancer in
early September, but his doctors opined that the likely cause of
death was pneumonia brought on by an aggressive and swift
infection.
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John and his wife T.C.
September 10, 2007 |
"John was an incredible warrior who approached mesothelioma
like he approached life, with individuality, vigor and courage,"
reflected Dr. Robert Cameron, thoracic surgeon at UCLA's
David Geffen School of Medicine who operated on John in
November, 2005.
"He never acknowledged the suffering that he endured, even to
the end," continued Dr. Cameron, who helped treat John at his
hotel in Washington when John suddenly developed severe pain in
his back and numbness while the two were attending a
mesothelioma medical symposium. "John dedicated himself to
helping others with the disease, even when his own life was in
jeopardy. His passing will be a sad loss for the entire
mesothelioma community."
John and T.C. were always thankful for the extra time they
believed Dr. Cameron gave them. When he was first diagnosed,
local doctors soberly predicted that John only had a few months
to live, and that aggressive treatments would be futile.
Good works from the heart of a great man
The McNamaras understood that mesothelioma patients faced a
gauntlet once they received their diagnosis. The biggest hurdle
is access to treatment. For patients who live far from the East
or West coasts, travel and lodging logistics consume precious
time, money, and emotional energy.
Having gone through the wringer, John immediately put himself
in the shoes of those not fortunate enough to live near UCLA,
and for whom a consultation at UCLA's mesothelioma program with
Dr. Cameron would be an unbearable burden. The McNamaras decided
to help ease the burden for others. They rented an apartment,
furnished it, and made it available for free to mesothelioma
patients visiting Los Angeles to consult with Dr. Cameron.
Kerry Kelley,
whose husband Kermit underwent surgery in October and who stayed
at the McNamara's mesothelioma
apartment,
calls the McNamaras "a godsend. John and T.C. didn't know us.
But they knew what we were going through. We couldn't have done
this without them."
John knew that his own experience with mesothelioma was
invaluable, and rather than dwell on his own situation he took
every opportunity to contribute and to support the cause of
eradicating mesothelioma. Every year at the MARF mesothelioma
symposium, John was there. Slapping backs, importuning
legislators, encouraging patients, interrogating researchers, he
awed those around him with his courage and good cheer. Hope, the
resource always in shortest supply for mesothelioma patients,
was as close as John's ten-acre smile, in unlimited quantities.
"He was an empowering, courageous man," says Linda Reinstein,
executive director and co-founder of the Asbestos Disease
Awareness Organization. "He told me about his next great goal-to
climb Half Dome. That unconquerable, sheer granite face that
looks impossible, but that you can get up if you take it one
step at a time. It's a meso march. One step at a time. And John
had it in his sights."
John's "Bully Pulpit"
When the 2007 conference came around, John cheerfully made
plans to attend once again as a donor, spokesman, and leader for
the patient community. Before the October symposium, however, he
learned that his cancer had returned. This time it had
metastasized as a tumor on his spine. His physician counseled
him to stay at home and gather his strength for an operation to
remove the tumor.
Stay at home? John McNamara? Miss the most important
mesothelioma advocacy conference of the year due to a
life-threatening tumor? Refuse to mount the steps and hold forth
from his bully pulpit? For John McNamara, the risks were worth
the reward.
He packed his bags and arrived at the conference full of
vigor and ready to lead the charge one more time. On Thursday
evening John joined the mesothelioma community on the steps of
our nation's Capitol, where he lent his powerful voice to a
candlelight vigil honoring those who had succumbed to the
ravages of asbestos. His voice and the voices of thousands of
others had coalesced into something concrete: passage of U.S.
Senator Patty Murray's Ban Asbestos Act.
"You know, if it wasn't for Dr. Cameron, I wouldn't be here,"
John mused on Thursday. "I wouldn't be anywhere. This cancer, I
don't have time for it. I have young children to raise and
important things to do-like making sure they get good report
cards."
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Jessica Like, Executor Director of thePacific Heart, Lung
& Blood Institute with John and his wife T.C.
Washington, D.C. October 4, 2007 |
John's priorities were grounded in the bedrock of his family.
He felt that his obligations as a father were the most important
ones he had, and he had no intentions of letting meso interfere.
The symposium saw John at his full-blown best, making new
friends who walked away feeling like they'd known him since
childhood. He chatted up countless strangers, people who lost
"stranger" status after the first five seconds, and lectured
them about the importance of investing in real estate. If you
had a hand, and you were at the 2007 symposium, it was shaken by
John McNamara. If you had a soul, he looked into it, and left
you smiling.
Jessica Like, executive director of the Pacific Heart, Lung &
Blood Institute, spoke eloquently about John and his journey.
“Three days ago I was present when Senator Patty Murray said,
‘When someone with great passion dies, that passion is passed
along to someone else,’ as she addressed a congregation of
mesothelioma patients. As I listened to her speech sitting next
to T.C., I thought about John’s absolute passion for life. Every
day he brought hope to other mesothelioma patients by sharing
his story, by donating time and money, and by spreading the word
about mesothelioma and our need to find a cure. Over this past
weekend I watched John smile as he told others about traveling,
raising his children, being a doting grandfather and husband,
and in his spare time, battling to fund mesothelioma research
and help pass legislation that would ban asbestos forever in
this country. His great passion was contagious and he bestowed
it upon the hundreds of people he touched. We have all been
robbed of John McNamara, but we will carry the legacy of his
passion in our hearts forever.”
The voice that none could silence
The relentless pace and pressure of the symposium began to
accumulate. Going full-bore all day Thursday and Friday, John's
massive frame slowly began to weaken. His method of rest? Taking
the afternoon off on Friday to go sightseeing. John struggled to
get from the front door of the hotel to the elevator, taking
baby steps.
Late that afternoon the paralysis set in, and John did not
leave his room that evening. A first. Then John missed the group
photo that night at dinner. A first.
Bowed, never broken, he made the stand of a giant at his last
MARF conference, refusing to let the disease deprive him of so
much as a single word. If meso would take him down, it would be
in the service of the people who needed him, surrounded by those
who loved him, calling out in righteousness and good cheer that
this disease must be cured now.
By Sunday night, when John's plane touched down in Los
Angeles, his condition was critical. Rushed to the emergency
room at UCLA, he succumbed in the early morning hours.
The speed and finality of John's passing has left us all
stunned, bringing to mind the wise words of another whose
beloved husband was similarly felled: "When the end of
mesothelioma comes as a shock, you know he has lived a
courageous life."
Better, more fitting words for a titan like John have never
been said.
John is survived by his wife T.C., and his three children Nicollette Annie, Shannon Hayley, and Katherine Claire.
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A memorial service was held on Wednesday, October 10, 2007 at the Crawford Mortuary in Northridge,
California.
The McNamara family has requested that in lieu of flowers,
donations be made to the
Pacific Heart, Lung &
Blood Institute. Donations should be made payable to:
PHLBI
11818 Wilshire Blvd., Suite 200
Los Angeles, CA 90025 |